Archive for "Health"
The Trips You Don’t Plan On Taking
Posted on January 23, 2025 by Ching under Health, Life.
We had two exciting trips to the ER this week. About 10-15 years ago we made a few trips to the ER because of my health issues. This time it was Brian’s turn. Kansas Medical Center (KMC) is our “go to” ER hospital. My first experience with KMC was when I fainted while enjoying our anniversary dinner at YaYa’s in 2011. That’s where the ambulance took me. We’ve been going there ever since.
Now that I know it’s there, that’s where we go any time we have some kind of health emergency because it’s relatively close to our house and it’s on the East side (our preferred side of town).
Since Monday was a holiday, I took advantage of my day off to go with Brian to his IV hydration appointment. We had a nice leisurely day and we just hung out at home and watched a movie the rest of the afternoon. After watching Back In Action together, Brian decided he would go lay down in the bedroom because he was tired and not feeling great. Before he went to the bedroom, I asked him several times if we should call the doctor and ask for advice. He told me no and that he was just going to lay down and try to sleep it off. It was still early so I decided to watch Emilia Perez. About the time my movie is over, he comes back out and he’s still not feeling good. It’s around 8-ish so probably too late to call the doctor. I don’t know what to do so I suggest we go to the ER and get him checked out.
We arrived at the ER around 8:30 pm on Monday evening. He explained everything to the ER doctor (Rundell-Little). They do a CT scan of his abdomen and we had to wait a long time for the results. The tech who can read these leaves at 5 pm so they have to send it to another location for review. Depending on how busy the hospital is, it could take a while to get results back. Anyway, we finally got the results back and there was nothing wrong with his abdomen. Feeding tube area looked good. Doctor did note that he had stool that he needed to move (read: poop out) and that was likely causing the discomfort. While we were there waiting, Brian hacked up a bunch of mucus build up and expelling that stuff seemed to make him feel better. The congestion was probably contributing to the pain he was feeling so, not thinking anything more of it, we were released from the ER (with instructions for Brian to have a bowel movement) and got home around midnight.
Honestly, I don’t think I would have been as insistent about going to the ER if not for Brian’s blood clot that was diagnosed last week. He’s on Eliquis for it but blood clots can cause all sorts of problems including a stroke. I didn’t want to go to bed and wake up to something bad happening to Brian. He was in a lot of pain so he wasn’t going to be able to sleep either. We had to go to the ER to get a professional opinion. If anything, it gave me piece of mind that there was nothing seriously wrong with him so I could at least sleep easier (albeit not as long because we were up until midnight and I had work the next day).
Brian has been working from home a lot so he worked from home on Tuesday. I normally work in the office Tuesday through Thursday so I went to work as normal on Tuesday but checked on him throughout the day. On the way home I picked up some more Pedialyte for him because the doctor recommended he drink it instead of just plain water. I guess he still didn’t have a bowel movement on Tuesday. At this point it’s been over a month, nearly two, since his last poop.
Wednesday I go to work as normal. Called him around 10 am to make sure he was up and feeding and taking his medication. Here’s the how the rest of that morning went according to Brian. Around noon, he starts to get around because he was going to drop off a package for me at the post office. As he is leaving, he feels the urge to poop. So then he goes to the bathroom but he has been super constipated because of the chemo so he can’t poop. He tries for two hours and he didn’t call me because he didn’t want to bother me at work. Around 2-ish he sends me the following text: I’m sorry to bother. I’m in trouble.
I immediately call him to figure out what’s going on. He tells me he is in so much pain from trying to poop and he is cramping so bad that his right hand is in a fist and he cannot open it. He is afraid he is going to pass out. Not wanting an Elvis situation, I tell him I’m coming home to take him to the ER. I rush home and we make it to the ER around 2:45 pm. I contacted Sheila Hodson (my group exercise coordinator at the West YMCA) to tell her I put my 6:30 pm Zumba class on the sub board because I wasn’t sure how long we would be there. I tried to look for someone to sub and posted in the Zumba messenger chat but its too short notice and everyone teaches classes at different locations at the same time. Anyway, my thought was I did bring my Zumba clothes to work that day so I had them with me. Worst case scenario, I would drive from KMC to the West Y, teach my class, and then come back. If Brian got released before I got back, then he could get a ride home from his cousin Zach Hyatt who lives down the street. Sheila was super understanding and encouraged me to stay with Brian. She reassured me that, if we could not find a sub, we could just cancel class. I really appreciated it because, while I would have done it, that was a lot of driving back and forth from Andover to the West side of town. And, there’s no way I could have taught class last night because we did not get released until almost 9 pm.
At the ER, they did an x-ray of Brian’s stomach and confirmed fecal impaction. I have heard of this happening to people but have never experienced it personally. Well, we can now cross this off the list because I now have almost first hand knowledge of what this is like. Brian said many times, he felt like he was going to die. He felt so much pain every time he tried to poop and he had really bad cramping all over his body (including his legs and his right fist not wanting to open). The was no way he could move this stool without assistance.
I only took one photo last night (the one below) because I felt so bad for him. He was writhing in pain.
First the nurse gave him an enema and let it sit for 30-40 minutes to see if it would trigger some pooping action. Brian tried but only expelled the enema liquid and no poop. A little bit later, she have him a bigger enema — 1 whole liter of soapy water solution. She let that sit for a while and then had Brian try to poop again. Once again, Brian expelled the enema liquid but no poop. In the meantime, it smelled god-awful in that exam room. I was like, “Are you sure there is no poop coming out because it sure smells like it?”
Anyway, since the enemas were not working, the nurse decided it was time to go “digital” — yes, friends, she was going to dig it out of him. OMG. I cannot imagine. She was probably wondering how she got the short straw and hoping that she had called in sick to work that day. She was a good sport thought. At one point, we rang for her and another nurse came. We thought she gave up and ran away but she was just busy with other patients. The doc on duty (Tucker) did warn us that they are a very busy emergency room.
Nurse Shawna came back to check on us and asked Brian why he didn’t want X (I can’t remember the other nurse’s name) to do “the thing” (read: dig the poop out of his ass). Brian was like, “She has big fingers.” I could not stop laughing. As tiny as nurse Shawna’s fingers are, it was still super painful for Brian. He screamed every time. She would get some of it out before he couldn’t take anymore and they’d have to take a break. She would leave, come back, and they would try again. This pattern repeated 2-3 times and she would get little bits out each time. And then around 7 pm, I had to go home and take care of Saki. She had not been fed as we’d been at the ER since 3 pm that afternoon.
When I returned, it was pretty much done. Brian said I missed the most horrible and gross parts. They gave him another enema (third time’s the charm) while I was gone. I guess whatever the nurse was doing loosened it up enough to where the enema actually worked. Shit was gushing out of him. The nurse asked him if he wanted to move to the toilet but he couldn’t stop it. She could barely keep up with replacing one poop pad after another. It sounded disgusting and I’m glad I wasn’t in the room for that part. By the time I got back, they had him mostly cleaned up. He said his stomach was feeling burbly. I encouraged him to try and poop before we leave. I really didn’t want him feeling like has to poop on the drive home or, worse, poop in the car. This last attempt was a success. He managed to poop the rest of the nearly two months worth of shit in his colon out. I could tell that he felt better after that. Imagine having two months worth of poop in your belly. I actually think he’s down to 130 pounds after. It was a crap ton – literally.
We were discharged at 8:40 pm and home by 9-ish. I helped him get in the shower – he needed it! Anyway, we are going to have to stay on top of this poop thing, in additional to all the other things. This whole cancer journey has been quite a ride. For the first time ever we actually completely tapped out our HSA account. As in, there’s no more money in it. Not sure if it will have been replenished in time for when these ER bills come due but we will cross that bridge when we get there. I’m just really grateful that Brian is okay and we are finally past this poop thing.
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Hurrah for Modern Medicine and Great Friends
Posted on January 5, 2025 by Ching under Health, Life.
With Cindy and Ed Egan, and Lou and Kory Parkhurst at Deano’s East.
When we first got Brian’s diagnosis, our friend Cindy told us that she has another friend who went through the exact same thing about ten years ago. We both agreed that it would be great to meet this couple and kind of hear about their experience, etc. Cindy arranged the dinner and we were actually supposed to meet at Wine Dive, closer to where the Parkhursts’ live, but Cindy had a crazy busy weekend (both she and Ed had pickleball tournaments that day) and so we had a last minute location change to Deano’s to be closer to the Egans’.
The funny part is we were just at Deano’s West the night before with some friends because I wanted to check out the fancy new location. Everything is the same food/drink menu-wise, the only difference because the new West side location is on a lake so if you’re out on the patio then you have better views. Nonetheless, the food didn’t matter to us. We were anxious to meet Kory and Lou and hear about their journey, how they got through it, and get their advice.
It was super helpful meeting Kory and Lou. Seeing Kory, looking happy and healthy 10 years later, really lifted our spirits. All the doctors were very positive that Brian would get through this okay but you don’t really know. Meeting someone who has gone through the very thing that you’re suffering from, and getting their insights was completely invaluable. I am beyond grateful to Cindy for making this dinner happen, which was the night before Brian’s first radiation treatment.
Kory’s cancer was nearly identical to Brian’s. His was further along and he also had his feeding tube installed before treatments began. Because he is a slender guy to begin with, their doctors determined that he couldn’t afford to lose any weight at all. Whereas with Brian, we were hopeful that he wouldn’t need a feeding tube at all. Wishful thinking on our part because once Brian hit 150 lbs, we were like, okay now we need to do something because he can’t lose anymore weight. In hindsight, we should have listened to Dr. Chris Dakhil and had the feeding tube installed early. You may or may not need it but it’s there if you do. It’ll help keep your nutrition up which is important because it’s hard to fight the good fight when you have zero energy. Which is what Brian’s going through now. He has zero energy to do anything. He is fatigued and tired all the time and all he wants to do is sleep.
We thought that we would not have any problems getting the feeding tube installed halfway through but we failed to take the holidays into account. By the time we decided to pull the trigger on the feeding tube, we had run into Christmas and New Year, and Dr. Imad Nassif only does these surgeries on Wednesdays so the first available date was January 8. You live and you learn. We know now but hoping we don’t have to use this knowledge ever again.
Anyway, it’s amazing to me how far we’ve come. It used to be getting diagnosed with cancer was a death sentence. I suppose a lot of it depends on the kind of cancer you have and how far along it has progressed unchecked. But, as unfortunate as it is for Brian to have gotten cancer, he is at least fortunate enough to have the kind that can be treated. We are meeting more and more cancer survivors which makes me think modern medicine has advanced enough that more and more people are winning the battle. We are hopeful that Brian will get through this just as Kory has and this will all be a faint memory a decade from now.
Here’s a picture of the two Deano’s locations for comparison:
This is a picture of the front of the OG Deano’s where we had dinner with the Parkhursts and Egans on Sunday night. It’s located at Cambridge Market, which is actually around the corner from Quarters at Cambridge where Brian and I used to live over 10 years ago.
This is a picture of the front of the new West location where we had dinner with other friends the previous night.
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Brian’s Health Journey
Posted on December 4, 2024 by Ching under Health.
Where to begin? I guess let’s start from the very beginning. Earlier this year Brian was having some dental issues. These issues were partly because of poor dental hygiene and taking things for granted. After at least three root canals, the endodontist decided Brian needed to see an oral surgeon to get a cyst removed from the front of his mouth. He originally had oral surgery scheduled shortly after our Colorado trip but the week that he was to have surgery he was suffering sore throat due to some kind of tonsil infection.
Brian’s oral surgeon, Dr. Christopher Harris, determined that the oral surgery should be postponed until Brian had his throat and tonsil issues looked at. The concern was that if they were to proceed with surgery the infection from the tonsil could infect the surgery area. So then Brian went to see Dr. Aaron Thiessen, an ear, nose, and throat specialist, about his issues. Brian ended up taking antibiotics which didn’t really do much so he and Dr. Thiessen agreed that the best course of action would be to simply remove his tonsils. Brian’s tonsillectomy was then scheduled for Thursday, October 3. However, the doctor noticed that Brian’s lymph node was swollen so, as a precautionary measure, he also scheduled a lymph node biopsy on September 30. This was the Monday before the tonsil surgery.
Brian’s lymph node biopsy revealed cancer. The ENT doc theorized that the cancer in Brian’s lymph node probably came from his infected tonsil but needed to confirm this. Instead of doing a tonsillectomy that following Thursday, Dr. Thiessen changed the procedure to a laryngoscopy and tonsil biopsy.
The biggest reason for not moving forward with the tonsillectomy being that, if the cancer needed to be treated, the doctor did not want treatment to be delayed by the post-tonsillectomy recovery. At the point, the greater priority would be to treat the cancer as quickly as possible.
Here are some pics of Brian I took during surgery day — actually it was laryngoscopy and tonsil biopsy day.
The following week it was confirmed that Brian did in fact have cancer in his tonsil which has spread to his lymph node. The next step was to complete a PET scan to find if the cancer had spread to other parts of his body. In the meantime, there was the matter of the cyst in his mouth that still needed to be removed. There was a delay in PET scans and he couldn’t get an appointment until October 24 and he couldn’t start any cancer treatments until the PET scan was done so we figured that he would have enough time to go through the oral surgery and recover from it before cancer treatments would begin. Otherwise, then he would have to wait until sometime the following year to do oral surgery because it wouldn’t be idea to do it in the middle of cancer treatments. It basically had to be done now or it would have to wait until the following year.
We chose the NOW option and, thankfully, one of our friends just happens to be the godmother of Brian’s oral surgeon. She pulled some strings and they were able to get him in right away. Speaking of which, what we thought was a cyst was actually not a cyst. It turned out to be a massive dental infection that had gotten so bad that it started to form a cyst-like substance in Brian’s mouth.
Because of Brian’s cancer diagnosis, we thought he would be in the middle cancer treatments (radiation and chemo) during the Mexico trip so we ended up canceling his flight (more on this later). However, due to delays with insurance approvals, Brian’s cancer treatments actually didn’t begin until a couple of week ago — after I got back from Mexico — so he totally could have gone on the trip.
Brian’s treatment consists of 35 days of daily (Monday through Friday) radiation treatments spread over 8 weeks and weekly chemotherapy over 6 weeks. Radiation would only have been 7 weeks but due to skipping treatments on the holidays — Thanksgiving, Black Friday, Christmas, and New Year’s Day — it comes out to 8 weeks total. His last radiation treatment is on January 9 and his last chemo treatment is on January 2.
I went with Brian to his first radiation appointment and got this video:
So far, to date, Brian has completed two chemo treatments (just four left to go) and is two and a half weeks into radiation. He is doing well so far but the radiation is definitely starting to take a toll. We have been posting updates on our Flip + Ching Facebook page so feel free to follow us there if you want to keep up with his progess.
In the meantime, we are super grateful for everyone’s support and prayers. Brian is lucky to have such wonderful people who care about him wishing him well and praying for his recovery. Thank you all!
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Experimenting with Drugs
Posted on April 23, 2024 by Ching under Health, Life.
Have you ever experimented with drugs? Well, that was me this weekend because I couldn’t figure out what was going on with my right knee.
Here’s what I learned… There are various over-the-counter pain meds you can take but they’re not all the same. Some pain meds are better for certain symptoms and issues.
I’ve never been a pill popper. I hate taking pills with a passion and I didn’t really start taking any pain meds for headaches or cramps until the last couple of years. In fact, when I had my thyroidectomy 12 years ago, I didn’t touch the Lortabs that I was prescribed. I took 2 Tylenol and that was it for my recovery.
Anyway, I’d been mostly taking Advil vs. Tylenol because I learned that Ibuprofen is better for treating inflammation but my knee pain was so bad on Tuesday that I had to get Hideki Fields to cover my Wednesday night class at West Y. Took a break from doing any kind of activity (no Zumba or pickleball) until Saturday morning when I had to cover Alisha Mickelson’s Saturday morning class at North Y and then I had a 3 PM at West Y that same afternoon (for the winner of the silent auction basket from the West YMCA Strong Community Campaign fundraising we did). I kept telling myself, I just need to get through the 3 PM class and then I can rest and maybe feel better tomorrow.
My knee was super sore that night and the next morning it was even worse. I could barely walk on Sunday and I scrambled to get my classes covered because there was no way I was dancing. I couldn’t even stand! We actually had to cancel the Sunday class because there was no one to sub it (everyone was at the Zumba event in Tulsa). So sorry, Andrea Burk! I put a post on FB but she didn’t see it and went only to find out class was canceled.
Here’s the experimentation comes in… My knee is sore and stiff and I can barely bend it so I was like, “Maybe I need Naproxen?” Anyway, my mom and dad who I saw in between my two commitments on Saturday gave me these blue pills (basically generic version of Aleve). They were like, “Yeah, we take these before bed and feel great in the morning.” I took one before bed on Saturday night and woke up and there was no difference – my knee actually felt worse. I’m like, “Maybe I need more?” So I took another around 8 AM and it was no help.
What I learned… Naproxen is good for joint pain caused by Arthritis so I’m guessing I do not have Arthritis because it did not work. However, I couldn’t go back to taking Advil immediately because you cannot mix Ibuprofen and Naproxen. I had to wait at least 12 hours for the Naproxen to be out of my system before I could take Advil. So Sunday night, before bed, I finally took 2 Advil. Woke up in the morning and my knee felt a little bit better. I took 2 Advil again at 8 AM and 12 PM and before bed yesterday. It seems to be helping. But I really need to know what’s wrong with my knee so I called our family physician’s office first thing yesterday morning to schedule an appointment. I wanted to get in on Monday but the first appointment they have available is today at 3:30 PM.
Advil seems to be helping but I don’t want to be completely dependent on it. And what if the 2 pills don’t work anymore. I need to figure out what’s wrong with me because I can’t live like this. Mom and dad suggested I find hobbies that don’t require physical activity. I can’t. Dancing is my life. Pickleball is my life. If I can’t dance or play pickleball I will be so depressed and then I’ll be needing other pills.
Anyway, here is a helpful chart to help you determine what to take for your pains and aches. I found it super helpful so I hope it helps you too.
Source: marshfieldclinic.org
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Dental Adventures from Brian’s Perspective
Posted on March 5, 2024 by Brian under Health, Life.
Now that you have read about my adventure from Ching’s point of view, I think you’ll want to hear it from the horse’s mouth… so to speak!
So, all of what Ching said is true. It’s my own fault that I’m in the situation that I’m in and, had I just pushed my anger down, and attempted to speak to the management at Wichita Endodontics I wouldn’t be in the situation I am currently in.
At the end of 2019, I was informed by my dentist that I had a small infection above my left front tooth. I was told that I needed to have a specialist take care of it due to the nature of the infection and the potential for further treatment that may be needed. It was just outside of the scope of what my dentist could tackle. Back then I was not as busy at work and taking the time to deal with these things was fairly simple. I was referred to Wichita Endodontics. Back then, they were at their old office. I went to my appointment, paid my $160 (a fee that was not able to be absorbed by insurance), and got all of my x-rays and images needed to get the procedure done. I was given two different methods that would take care of the problem and given the percentage of success for each. One was a root canal method. The other was a small incision over my tooth. The incision had a greater chance of success. I chose the root canal method because it was less expensive, less invasive, and I just really didn’t like the idea of being cut open. All was decided. I explained everything to Ching (which she has forgotten) and she was all for it. We had a few things going on, so I scheduled my procedure for about 2 months later. Well, as Luck would have it, this is when Wichita finally decided to shut down — literally 4 days before my procedure. So, I get a call from the endo telling me that they are going to have to cancel for now, and they will call once everything is sorted and they are able to see patients again. I understood completely, given everything that was going on I figured that there would be something like this and I was already mentally prepared for this.
Fast forward, it’s now almost the end of 2020. I get a call from the endo — they are ready to reschedule my appointment and get the procedure done. I was thinking, this means pick up where they left off. No! The person that called stated “Oh, by the way, we will need to do the scans again and you will need to pay the fee again.” I asked if she was sure and she said, “Unfortunately, yes.” I replied with “Well, unfortunately… No!” and hung up the phone. Was this the right thing to do? Not at all. I should have requested to speak to someone, work out the details, and see if they would just do the new scans given that I already paid. I know now (in hindsight) that this could have been resolved right then and I would not be in the situation I am in.
I proceeded on with life, not thinking about the growing infection in my mouth. I was not in any pain. My life went on as normal. I was reminded every year when I saw the dentist that I needed to get this taken care of and every year I reminded him of why I didn’t want to speak to them and on more than one occasion I was advised, in a very professional way, to grow up.
Now we come to my most recent appointment. My dentist takes the x-rays, comes to me and the first thing he says, “You really need to get this taken care of.” I shrug my shoulders and the doc says, “No, we’re getting this fixed.” He gives the details to the hygienist and she takes me to the appointment desk. She hands the business card to the lady behind the desk and proceeds to tell her “Brian is having an issue making an appointment. Can you call and get something scheduled for him?” And she does just that. I don’t blame them for treating me like a child as I was acting like one — an old, grumpy child. Shortly after my appointment was made is when the fistula appeared. Since I had the appointment, I toughed it out. I was told that the fistula is a result of the infection spreading and that if I didn’t get this take care of it would only get worse, and there is a chance that it already is, and I may still need oral surgery by this time next year.
I did tell the doctor of my issue in the past and why I didn’t do this sooner. He informed me that had I just come and spoke to someone then this could have been resolved very easily and I would not be in the mess I am in now. Reconfirming that this is really all my fault! On the plus side, the doctor did make it right, even after all these years, and he really didn’t have to. I mean seriously, ultimately, it was me that made the decision to just blow the whole thing off.
Well, we move to the day of my procedure. I can say with absolute certainty that they mean what they say. It was the first root canal that I have ever had done that I didn’t feel anything. Even after the numbing wore off, I only had a slight tingle in my upper gum and tooth and that’s it. I did take an Advil that night, mainly for inflammation (it was highly suggested in the follow up paperwork) and then a Tylenol the next morning — more as a precaution than anything, I didn’t really need it, but I had to go back to work, and I didn’t want to risk feeling any pain as the day progressed.
Now I have to wait. The first thing I have to wait for is the fistula to go away. They said I had to wait about four weeks and, if it’s not gone by then, I have to let them know. They advised it may flare up before it goes away (I think that happened this weekend, at least I’m hoping that’s what happened) and, if it doesn’t go away in that four weeks, I have to call them back for another appointment and it may mean oral surgery for sure. If the fistula does go away, then I have to wait another six months. They are going to call me in 5 to schedule an appointment. This will be to see if the infection is going away, if the infection is going away on its own, then I’m in the clear (meaning – no surgery). If not, then I will have surgery by this time next year.
I have to say that several lessons have been learned from this adventure.
- Stay on top of your brushing, make sure that you brush at least twice a day, at a minimum. I personally have also started to use medicated mouth wash as well, mainly because I still suck at flossing. But my oral hygiene has improved due to this.
- If something needs to be done, don’t wait. Do it, get it done. You have no idea how bad things can get if you put it off. There are just some things that your body will not fix on its own.
- Don’t let your emotions govern how you take care of yourself. Had I just spoke to someone and worked it out, I wouldn’t be in this situation. I could potentially lose several of my teeth because I let my emotions get the better of me. Unfortunately, this is a family trait.
- Finally, all things can be resolved through communication. I should have known this, my wife an I practice this. We believe that communication is key, not only in a relationship, but in life in general. If you’re having an issue, work it out like adults and have a discussion. Had I just spoke to someone other than the attendant that called me, I could have gotten all of this resolved and not be in the situation I’m in.
In the end, I’m grateful for my wife Ching. She is always there for me. She takes care of me when I need it and tells me how bad I’ve screwed up when I need to hear it. I don’t know where I’d be without her. Probably toothless.
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