Archive for "Health"
Hurrah for Modern Medicine and Great Friends
Posted on January 5, 2025 by Ching under Health, Life.
With Cindy and Ed Egan, and Lou and Kory Parkhurst at Deano’s East.
When we first got Brian’s diagnosis, our friend Cindy told us that she has another friend who went through the exact same thing about ten years ago. We both agreed that it would be great to meet this couple and kind of hear about their experience, etc. Cindy arranged the dinner and we were actually supposed to meet at Wine Dive, closer to where the Parkhursts’ live, but Cindy had a crazy busy weekend (both she and Ed had pickleball tournaments that day) and so we had a last minute location change to Deano’s to be closer to the Egans’.
The funny part is we were just at Deano’s West the night before with some friends because I wanted to check out the fancy new location. Everything is the same food/drink menu-wise, the only difference because the new West side location is on a lake so if you’re out on the patio then you have better views. Nonetheless, the food didn’t matter to us. We were anxious to meet Kory and Lou and hear about their journey, how they got through it, and get their advice.
It was super helpful meeting Kory and Lou. Seeing Kory, looking happy and healthy 10 years later, really lifted our spirits. All the doctors were very positive that Brian would get through this okay but you don’t really know. Meeting someone who has gone through the very thing that you’re suffering from, and getting their insights was completely invaluable. I am beyond grateful to Cindy for making this dinner happen, which was the night before Brian’s first radiation treatment.
Kory’s cancer was nearly identical to Brian’s. His was further along and he also had his feeding tube installed before treatments began. Because he is a slender guy to begin with, their doctors determined that he couldn’t afford to lose any weight at all. Whereas with Brian, we were hopeful that he wouldn’t need a feeding tube at all. Wishful thinking on our part because once Brian hit 150 lbs, we were like, okay now we need to do something because he can’t lose anymore weight. In hindsight, we should have listened to Dr. Chris Dakhil and had the feeding tube installed early. You may or may not need it but it’s there if you do. It’ll help keep your nutrition up which is important because it’s hard to fight the good fight when you have zero energy. Which is what Brian’s going through now. He has zero energy to do anything. He is fatigued and tired all the time and all he wants to do is sleep.
We thought that we would not have any problems getting the feeding tube installed halfway through but we failed to take the holidays into account. By the time we decided to pull the trigger on the feeding tube, we had run into Christmas and New Year, and Dr. Imad Nassif only does these surgeries on Wednesdays so the first available date was January 8. You live and you learn. We know now but hoping we don’t have to use this knowledge ever again.
Anyway, it’s amazing to me how far we’ve come. It used to be getting diagnosed with cancer was a death sentence. I suppose a lot of it depends on the kind of cancer you have and how far along it has progressed unchecked. But, as unfortunate as it is for Brian to have gotten cancer, he is at least fortunate enough to have the kind that can be treated. We are meeting more and more cancer survivors which makes me think modern medicine has advanced enough that more and more people are winning the battle. We are hopeful that Brian will get through this just as Kory has and this will all be a faint memory a decade from now.
Here’s a picture of the two Deano’s locations for comparison:
This is a picture of the front of the OG Deano’s where we had dinner with the Parkhursts and Egans on Sunday night. It’s located at Cambridge Market, which is actually around the corner from Quarters at Cambridge where Brian and I used to live over 10 years ago.
This is a picture of the front of the new West location where we had dinner with other friends the previous night.
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Brian’s Health Journey
Posted on December 4, 2024 by Ching under Health.
Where to begin? I guess let’s start from the very beginning. Earlier this year Brian was having some dental issues. These issues were partly because of poor dental hygiene and taking things for granted. After at least three root canals, the endodontist decided Brian needed to see an oral surgeon to get a cyst removed from the front of his mouth. He originally had oral surgery scheduled shortly after our Colorado trip but the week that he was to have surgery he was suffering sore throat due to some kind of tonsil infection.
Brian’s oral surgeon, Dr. Christopher Harris, determined that the oral surgery should be postponed until Brian had his throat and tonsil issues looked at. The concern was that if they were to proceed with surgery the infection from the tonsil could infect the surgery area. So then Brian went to see Dr. Aaron Thiessen, an ear, nose, and throat specialist, about his issues. Brian ended up taking antibiotics which didn’t really do much so he and Dr. Thiessen agreed that the best course of action would be to simply remove his tonsils. Brian’s tonsillectomy was then scheduled for Thursday, October 3. However, the doctor noticed that Brian’s lymph node was swollen so, as a precautionary measure, he also scheduled a lymph node biopsy on September 30. This was the Monday before the tonsil surgery.
Brian’s lymph node biopsy revealed cancer. The ENT doc theorized that the cancer in Brian’s lymph node probably came from his infected tonsil but needed to confirm this. Instead of doing a tonsillectomy that following Thursday, Dr. Thiessen changed the procedure to a laryngoscopy and tonsil biopsy.
The biggest reason for not moving forward with the tonsillectomy being that, if the cancer needed to be treated, the doctor did not want treatment to be delayed by the post-tonsillectomy recovery. At the point, the greater priority would be to treat the cancer as quickly as possible.
Here are some pics of Brian I took during surgery day — actually it was laryngoscopy and tonsil biopsy day.
The following week it was confirmed that Brian did in fact have cancer in his tonsil which has spread to his lymph node. The next step was to complete a PET scan to find if the cancer had spread to other parts of his body. In the meantime, there was the matter of the cyst in his mouth that still needed to be removed. There was a delay in PET scans and he couldn’t get an appointment until October 24 and he couldn’t start any cancer treatments until the PET scan was done so we figured that he would have enough time to go through the oral surgery and recover from it before cancer treatments would begin. Otherwise, then he would have to wait until sometime the following year to do oral surgery because it wouldn’t be idea to do it in the middle of cancer treatments. It basically had to be done now or it would have to wait until the following year.
We chose the NOW option and, thankfully, one of our friends just happens to be the godmother of Brian’s oral surgeon. She pulled some strings and they were able to get him in right away. Speaking of which, what we thought was a cyst was actually not a cyst. It turned out to be a massive dental infection that had gotten so bad that it started to form a cyst-like substance in Brian’s mouth.
Because of Brian’s cancer diagnosis, we thought he would be in the middle cancer treatments (radiation and chemo) during the Mexico trip so we ended up canceling his flight (more on this later). However, due to delays with insurance approvals, Brian’s cancer treatments actually didn’t begin until a couple of week ago — after I got back from Mexico — so he totally could have gone on the trip.
Brian’s treatment consists of 35 days of daily (Monday through Friday) radiation treatments spread over 8 weeks and weekly chemotherapy over 6 weeks. Radiation would only have been 7 weeks but due to skipping treatments on the holidays — Thanksgiving, Black Friday, Christmas, and New Year’s Day — it comes out to 8 weeks total. His last radiation treatment is on January 9 and his last chemo treatment is on January 2.
I went with Brian to his first radiation appointment and got this video:
So far, to date, Brian has completed two chemo treatments (just four left to go) and is two and a half weeks into radiation. He is doing well so far but the radiation is definitely starting to take a toll. We have been posting updates on our Flip + Ching Facebook page so feel free to follow us there if you want to keep up with his progess.
In the meantime, we are super grateful for everyone’s support and prayers. Brian is lucky to have such wonderful people who care about him wishing him well and praying for his recovery. Thank you all!
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Experimenting with Drugs
Posted on April 23, 2024 by Ching under Health, Life.
Have you ever experimented with drugs? Well, that was me this weekend because I couldn’t figure out what was going on with my right knee.
Here’s what I learned… There are various over-the-counter pain meds you can take but they’re not all the same. Some pain meds are better for certain symptoms and issues.
I’ve never been a pill popper. I hate taking pills with a passion and I didn’t really start taking any pain meds for headaches or cramps until the last couple of years. In fact, when I had my thyroidectomy 12 years ago, I didn’t touch the Lortabs that I was prescribed. I took 2 Tylenol and that was it for my recovery.
Anyway, I’d been mostly taking Advil vs. Tylenol because I learned that Ibuprofen is better for treating inflammation but my knee pain was so bad on Tuesday that I had to get Hideki Fields to cover my Wednesday night class at West Y. Took a break from doing any kind of activity (no Zumba or pickleball) until Saturday morning when I had to cover Alisha Mickelson’s Saturday morning class at North Y and then I had a 3 PM at West Y that same afternoon (for the winner of the silent auction basket from the West YMCA Strong Community Campaign fundraising we did). I kept telling myself, I just need to get through the 3 PM class and then I can rest and maybe feel better tomorrow.
My knee was super sore that night and the next morning it was even worse. I could barely walk on Sunday and I scrambled to get my classes covered because there was no way I was dancing. I couldn’t even stand! We actually had to cancel the Sunday class because there was no one to sub it (everyone was at the Zumba event in Tulsa). So sorry, Andrea Burk! I put a post on FB but she didn’t see it and went only to find out class was canceled.
Here’s the experimentation comes in… My knee is sore and stiff and I can barely bend it so I was like, “Maybe I need Naproxen?” Anyway, my mom and dad who I saw in between my two commitments on Saturday gave me these blue pills (basically generic version of Aleve). They were like, “Yeah, we take these before bed and feel great in the morning.” I took one before bed on Saturday night and woke up and there was no difference – my knee actually felt worse. I’m like, “Maybe I need more?” So I took another around 8 AM and it was no help.
What I learned… Naproxen is good for joint pain caused by Arthritis so I’m guessing I do not have Arthritis because it did not work. However, I couldn’t go back to taking Advil immediately because you cannot mix Ibuprofen and Naproxen. I had to wait at least 12 hours for the Naproxen to be out of my system before I could take Advil. So Sunday night, before bed, I finally took 2 Advil. Woke up in the morning and my knee felt a little bit better. I took 2 Advil again at 8 AM and 12 PM and before bed yesterday. It seems to be helping. But I really need to know what’s wrong with my knee so I called our family physician’s office first thing yesterday morning to schedule an appointment. I wanted to get in on Monday but the first appointment they have available is today at 3:30 PM.
Advil seems to be helping but I don’t want to be completely dependent on it. And what if the 2 pills don’t work anymore. I need to figure out what’s wrong with me because I can’t live like this. Mom and dad suggested I find hobbies that don’t require physical activity. I can’t. Dancing is my life. Pickleball is my life. If I can’t dance or play pickleball I will be so depressed and then I’ll be needing other pills.
Anyway, here is a helpful chart to help you determine what to take for your pains and aches. I found it super helpful so I hope it helps you too.
Source: marshfieldclinic.org
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Dental Adventures from Brian’s Perspective
Posted on March 5, 2024 by Brian under Health, Life.
Now that you have read about my adventure from Ching’s point of view, I think you’ll want to hear it from the horse’s mouth… so to speak!
So, all of what Ching said is true. It’s my own fault that I’m in the situation that I’m in and, had I just pushed my anger down, and attempted to speak to the management at Wichita Endodontics I wouldn’t be in the situation I am currently in.
At the end of 2019, I was informed by my dentist that I had a small infection above my left front tooth. I was told that I needed to have a specialist take care of it due to the nature of the infection and the potential for further treatment that may be needed. It was just outside of the scope of what my dentist could tackle. Back then I was not as busy at work and taking the time to deal with these things was fairly simple. I was referred to Wichita Endodontics. Back then, they were at their old office. I went to my appointment, paid my $160 (a fee that was not able to be absorbed by insurance), and got all of my x-rays and images needed to get the procedure done. I was given two different methods that would take care of the problem and given the percentage of success for each. One was a root canal method. The other was a small incision over my tooth. The incision had a greater chance of success. I chose the root canal method because it was less expensive, less invasive, and I just really didn’t like the idea of being cut open. All was decided. I explained everything to Ching (which she has forgotten) and she was all for it. We had a few things going on, so I scheduled my procedure for about 2 months later. Well, as Luck would have it, this is when Wichita finally decided to shut down — literally 4 days before my procedure. So, I get a call from the endo telling me that they are going to have to cancel for now, and they will call once everything is sorted and they are able to see patients again. I understood completely, given everything that was going on I figured that there would be something like this and I was already mentally prepared for this.
Fast forward, it’s now almost the end of 2020. I get a call from the endo — they are ready to reschedule my appointment and get the procedure done. I was thinking, this means pick up where they left off. No! The person that called stated “Oh, by the way, we will need to do the scans again and you will need to pay the fee again.” I asked if she was sure and she said, “Unfortunately, yes.” I replied with “Well, unfortunately… No!” and hung up the phone. Was this the right thing to do? Not at all. I should have requested to speak to someone, work out the details, and see if they would just do the new scans given that I already paid. I know now (in hindsight) that this could have been resolved right then and I would not be in the situation I am in.
I proceeded on with life, not thinking about the growing infection in my mouth. I was not in any pain. My life went on as normal. I was reminded every year when I saw the dentist that I needed to get this taken care of and every year I reminded him of why I didn’t want to speak to them and on more than one occasion I was advised, in a very professional way, to grow up.
Now we come to my most recent appointment. My dentist takes the x-rays, comes to me and the first thing he says, “You really need to get this taken care of.” I shrug my shoulders and the doc says, “No, we’re getting this fixed.” He gives the details to the hygienist and she takes me to the appointment desk. She hands the business card to the lady behind the desk and proceeds to tell her “Brian is having an issue making an appointment. Can you call and get something scheduled for him?” And she does just that. I don’t blame them for treating me like a child as I was acting like one — an old, grumpy child. Shortly after my appointment was made is when the fistula appeared. Since I had the appointment, I toughed it out. I was told that the fistula is a result of the infection spreading and that if I didn’t get this take care of it would only get worse, and there is a chance that it already is, and I may still need oral surgery by this time next year.
I did tell the doctor of my issue in the past and why I didn’t do this sooner. He informed me that had I just come and spoke to someone then this could have been resolved very easily and I would not be in the mess I am in now. Reconfirming that this is really all my fault! On the plus side, the doctor did make it right, even after all these years, and he really didn’t have to. I mean seriously, ultimately, it was me that made the decision to just blow the whole thing off.
Well, we move to the day of my procedure. I can say with absolute certainty that they mean what they say. It was the first root canal that I have ever had done that I didn’t feel anything. Even after the numbing wore off, I only had a slight tingle in my upper gum and tooth and that’s it. I did take an Advil that night, mainly for inflammation (it was highly suggested in the follow up paperwork) and then a Tylenol the next morning — more as a precaution than anything, I didn’t really need it, but I had to go back to work, and I didn’t want to risk feeling any pain as the day progressed.
Now I have to wait. The first thing I have to wait for is the fistula to go away. They said I had to wait about four weeks and, if it’s not gone by then, I have to let them know. They advised it may flare up before it goes away (I think that happened this weekend, at least I’m hoping that’s what happened) and, if it doesn’t go away in that four weeks, I have to call them back for another appointment and it may mean oral surgery for sure. If the fistula does go away, then I have to wait another six months. They are going to call me in 5 to schedule an appointment. This will be to see if the infection is going away, if the infection is going away on its own, then I’m in the clear (meaning – no surgery). If not, then I will have surgery by this time next year.
I have to say that several lessons have been learned from this adventure.
- Stay on top of your brushing, make sure that you brush at least twice a day, at a minimum. I personally have also started to use medicated mouth wash as well, mainly because I still suck at flossing. But my oral hygiene has improved due to this.
- If something needs to be done, don’t wait. Do it, get it done. You have no idea how bad things can get if you put it off. There are just some things that your body will not fix on its own.
- Don’t let your emotions govern how you take care of yourself. Had I just spoke to someone and worked it out, I wouldn’t be in this situation. I could potentially lose several of my teeth because I let my emotions get the better of me. Unfortunately, this is a family trait.
- Finally, all things can be resolved through communication. I should have known this, my wife an I practice this. We believe that communication is key, not only in a relationship, but in life in general. If you’re having an issue, work it out like adults and have a discussion. Had I just spoke to someone other than the attendant that called me, I could have gotten all of this resolved and not be in the situation I’m in.
In the end, I’m grateful for my wife Ching. She is always there for me. She takes care of me when I need it and tells me how bad I’ve screwed up when I need to hear it. I don’t know where I’d be without her. Probably toothless.
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Brian’s Dental Adventures
Posted on March 4, 2024 by Ching under Health, Life.
I asked Brian to write about his experience as a warning to everyone out there not taking care of teeth but he’s not going to write about it so I’m going to do my best to tell this story from my perspective. I’m probably going to mess up parts of it but that’s what you get from hearing about what happened second hand(ish).
Last year Brian told me he needed to get some dental work done. He had this tooth that was bothering him and it had caused an infection of some sort. I urged him to get it done at the end of the year because, at my last dental appointment, our dentist’s office told me we had “unused benefits” for the year. In my brain, I’m thinking “We better spend it!” However, I didn’t need anything further done beyond the fillings which I actually got done last year because, for the first time ever in several years, I had cavities. Well, Brian always drags his feet to do things so he didn’t get the treatment needed before the year ended.
Fast forward to the beginning of the year, when the infection was finally causing him significant pain and discomfort and finally needed to be dealt with… Even then, though, he probably still wouldn’t have scheduled an appointment with the endodontist. Yes, a specialist had to deal with this situation because the problem had gotten so bad that it was far beyond what our regular dentist is capable of handling. Anyway, at the end of his last dental appointment, they actually called the endodontist office and scheduled his appointment for him because they didn’t trust that he would do it. I had no idea that this problem actually went as far back as before the pandemic (more on that in minute) but, considering how long he had been putting this off, I wouldn’t trust him to deal with it either.
Here are some pics that I took at the endodontist’s office when we were there for this procedure a couple of weeks ago. I have almost 30 days of vacation time (and no pickleball tournaments to travel to) this year so I have a crap ton of time to burn. I decided to use one of my three personal days offs (I think most people just get one PTO bucket but our work gives us three “personal” days in addition to our vacation time and we can use those “personal” days however we wish) to “take care” of him. I was mostly just there for moral support. He didn’t really need much caring for but I’m glad I got to keep him company. I always appreciate the days we get to spend together.
I had never been to the old Wichita Endodontics office but Brian was there a few years ago (when he should have dealt with this problem and didn’t) and he says the new office is much nicer. The waiting area is comfortable and decorated beautifully. Their furniture and decor reminds me of the decor at the Belmont — like 60s modern. Anyway, I also appreciate that there is free public WiFi in the lobby.
I went with Brian because he wasn’t sure if they would knock him out for the procedure and he would be too groggy to drive home. He wasn’t knocked out so he was totally fine but I think he was grateful to have me there. Besides being there for support, and in case he needed a driver, part of me was hoping they would let me livestream the whole thing – lol. No such luck. They wouldn’t let me back there with him so I was glad I planned ahead and brought my book to read. Shift is book two of the Silo series. I can tell you more about it in another post rather than hijacking this one.
Here are some pictures of Brian’s mouth x-rays from his pre-op appointment. So back in 2019-2020 time frame, the infection was only the size of a pea (left). He didn’t do anything for several years so it grew to the size of a ping pong ball and eventually a fistula formed. Don’t look that up. It’s gross.
I didn’t even know about the problem back then or, if he mentioned it to me, I had forgotten about it. The first time I’d caught wind of this issue was last year and, even then, I encouraged him to take care of it immediately. You’re probably wondering what happened in 2020 and why he didn’t take care of it then. I wondered the same. Well, the pandemic happened.
Here’s the story that Brian told me: The dentist discovered the problem in 2019 and referred him to Wichita Endodontics. He went for his pre-op, got x-rays done, and paid whatever amount it was he needed to pay for all of that pre-work. Then everything was shut down because of the pandemic so the operation that was scheduled and set to go got canceled. Months later when everything reopened and people figured out a way to continue with life in the midst of a raging pandemic, he contacted them to try and get the procedure done. However, they wanted to do all the pre-op stuff again. Fair, because it had been months and the situation in his mouth may have changed (things could have shifted and so forth) and so they wanted to do all new x-rays and stuff. Brian felt that it wasn’t his fault that they canceled his operation and was pissed off at this whole situation so he was like, fuck that — I guess I’m not going through with the operation. He was thinking he was punishing them by not giving them any more money but in reality he was really just punishing himself by not dealing with this infection thing. Anyway, rather than talking to them about the whole thing and telling them exactly why he is angry, he pretty much was like, “Okay. Never mind. Thank you.”
Dr. Hoffman at Wichita Endodontics was great to work with. Brian told me that after he told the doctor what happened, the doctor told him he should have said something to them instead of just suffering in silence all these years because they would have made it right. I mean, they actually did make it right. They gave Brian credit for what he originally paid for because the original operation never happened. Anyway, here are some more x-rays of Brian’s teeth:
They had to do a double root canal, which was the first step to clearing up that infection. Brian has a follow up appointment this week to see if the infection has drained itself and has pretty much healed. If things look good then he won’t have to go through oral surgery. If the root canals didn’t solve the problem then he has another operation to look forward to because this time they’ll have to do actual surgery remove the infection.
Let’s hope and pray that the infection is gone because all of this dental stuff has not been fun for Brian. Kudos to Wichita Endodontics and Dr. Hoffman for being awesome. May we not have to see you all again. LOL.
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